Відео

Thank you Shirley. I am diagnosed with mitochondrial melas. After my mother passed away. Finally realised after long suffering she had it as well her sister and her mother all had it. Whole family passed now. It is hard. Stay strong

Shelley, bravo for being able to speak so well in front of many considering u were suffering from the inside so badly. I’ve never heard of this disease but will read up on it.. Thankyou for sharing your story and u will remain in my thoughts…. Best of everything that life can offer Shelley to both you and your husband.

Boring.

I can understand the biological desire to have your "own child." I was diagnosed with mitochondrial myopathy (merrf type) in 1992 at age 12 following genetic tests and muscle biopsy. As someone with this disease and understanding when diagnosed that I would pass it down so chose not to have children. I'm not financially well off otherwise I would love to adopt because there r so many children already without parents. I've never understood the necessity to have a child who physically resembles u and stubbornness isn't a genetic trait, it's a learned behavior that can be passed down to a non biological child. I would never put my husband and child in a position where I knew I wouldn't be around to help raise that child. Best of luck to u and I hope u find some alternative method of having a family whether it be adoption or surrogacy.

Wish there could be a bionic eye for glaucoma patients.

After more than 7 years, nothing has been achieved...???

My request help my senis.

His mentality is a gift to get to see into

Fascinating podcast. Thank you Professor Ian

Even ckd stage 5 can cure it?😊

do you ever wonder who gets involved?R Stalker

I'm recently diagnosed. Suffered with symptoms since 2008.

Can stem cells repair kidney

sir good morning How to make and start treatment for Retinitis Pigmentosa for Bionic Eye ? please give me informations i am from nepal it is very nice video for all nepali people

My son have mitochondrial dysfunction he is 6 years but he have autism symptoms there is any medical treatment to help him i give him only vitamins to support cells

Embarrassing these people are going to be nuked rather than admit abuses wkth sports betting using the neural stintrode electric recording array.

*Promo sm* 😒

Nicholas opie

54:30 to answer this guy's question, in a catastrophic emergency, you could theoretically use a contagious viral-vector like an adenovirus to apply a vaccine. Astra Zeneca, J&J use a similar technique. It dates back to 1999 and Jesse Gelsinger. RIP. But see the EU, AU, and other nations building mRNA vax mega-factories right now, they're going to be marketing (pre-emptive) cures for diseases we didn't even know existed. Printed in a day, in patients within a week!

25:22 the choice was bizarre because it wasn't about HIV. That's just plausible deniability in action. Dr. He's method damaged the beta-thalessemia gene. This change does what is claimed with HIV, but ALSO is known to increase intelligence. I believe George Church brings this up at the Hello World conference on Code of the Wild. That'll get you way further ahead on the state-of-the-art than this panel with their minds in 2009 will. The 'no HIV and higher intelligence' thing sounds great until you find out that when two damaged sets of these genes meet, it creates a disease in offspring much like sickle-cell, beta-thalessemia disease. I'd get censored if I use the antonym to 'eugenic' but it's that: if we ever can't gene edit the next generation with such a change, terrible things happen to generations of the future. If you replay to Dr. He talking, you'll hear him reference this. He says that it's more difficult to repair a damaged gene, and that's something for the future. His technique was blunt, but the vector was precisely chosen.

These people are so behind the times. You can order this stuff to your house and start modifying yourself at home like Josiah Zayner and Odin. Thermofisher has a tool for writing CRISPR/CAS9 inserts in to human plasmids. Chat GPT will write genetic code... Imagine what you can do with that! I was able to get ChatGPT to write watermarked inserts based on the method used in Craig Venter's 'first synthetic life', then que an order for them from Thermofisher. Dr. He was 8 years ago, you don't think more people have done this by now? Putin went to the UN to talk about regulating genetically modified super-soldiers and nobody listened. His daughter is a geneticist. I suspect we've already seen genetically modified athletes: namely the Chinese weightlifters at the last Summer games. There have already been human experiments in muscle growth. Again, Josiah Zayner. Now add in the R&D budget of China It's nice that you guys want to put this off for 100, 150 years, 22:44 but it's already happening!!!

A friend is in his 70s and has just been diagnosed with mitochondrial disease i think he has had this all his life. Poor growth poor vision hearing and muscle strength but after a blood went sepsis because of a kidney stone his one eye started to droop after a muscle biopsy he was diagnosed. His mother died when all her system just failed and a cousin just died of als and fld.

0:23 People used to recite God Save the Queen, or sing the national anthem at the start of an event. Now they announce their loyalty and devotion to the tyranny of Woke Progressivism.

Why do the inventors of a thing consider themselves the arbiters of the ethics of that thing? I would assume the man who invented the gun didn't have the greatest foresight in to it's long-term effects.

Thanks Shelley for sharing your story. So sorry to hear about this! Mitochondrial diseases are often underdiagnosed. And I strongly believe that advocacy and support groups are better positioned to build public awareness of the diseases to improve patient lives. Strength to you and your family. May God be with you!

So how is she now?

8:58 you are insanely strong i applause you for standing and talking

6:12 OMG I'm so so sorry 😢

3:28 so sorry for your loss 😢😢😢😢😢

Date-April 26, 2017 Firtsly, Oboma by then was just a "common" criminal, no longer the 🤢criminal president of the United States of America criminal.Why this prestigious doctor choose that crook to promote his work is mystery.

Aldous Huxley’ Brave New World addressed this issue almost a century ago.

I think it will take another 20 years to get into practical use

Has someone tried pqq for mito disease ?

Replacing water walkers with scientists.

Ia have mitochondrial dysfunction its very difficult i cant run and do sport its a hopeless .i hope there wil be a medicine .i pray to god for it .i would.pay anything for it

100% Big Pharma sponsored work. + a massive demonstration of motivational thinking. Zero opposing views allowed in this conversation. Zero debate.

I agree that you should be able to genetically select for a healthy baby, yet I don't believe that babies should be born with chores to do such as offering succor to a depressive woman with hefty health challenges. In the annuls of time there's never been an inalienable right to have children. Furthermore, bringing a child into the world who'll likely have to become its mother's caregiver, is unfair. Should this woman be able to carry a pregnancy to full term, though I doubt it, her medical condition would likely worsen dramatically through the stress of pregnancy, delivery and caring for her infant. Her reasons for wanting a child are understandable but selfish and lack insight. She herself doesn't believe she will live long but is prepared to abandon her child so long as this child shares her personality and mannerism so that her partner will always remember what she was like whenever he looks at the child they made together. It's a heartbreaking story for which I hope she's getting counselling. As she said, it's up to her and of course the lawmakers and ethics committee whether or not she should continue with the treatment and whether her health can tolerate the challenges.

I need a Kidney as soon it’s posible. Can you provide information to enrolled in a program to participate in the stem cell program as one of the patients.

With the powerful herbs I ordered from Dr. Ogudugu on UA-cam I got my complete and permanent cure for herpes HSV. I know it’s hard to believe but you can contact him and order them meds.

Studies have shown that with certain genetic snps exposure to the mycotoxins produced by mold can induce mitochondrial dysfunction. Because each person is different so are the affects. Organic acids test from Great Plains and a functional practitioner are, at present, the only way out.

WOW!!!! Is there an update on this research?

I have a question. How do males and females bond with each other? I don't see how men and women can bond (especially romantically) with each other. Women can build incredible friendships and become very close to each other in a way men can't bond, and science shows that women can bond very well with each other. Generally, women are even more social than men are. After something bad happens, a woman quickly rushes to talk to all of her female friends to get support, whereas a man can isolate himself and grief alone. Women tend to be more emotional, more caring, more empathic, more compassionate, more affectionate, more loyal, more nurturing, more understanding, more sympathetic, more sensitive, more kind hearted, more peaceful, more calmer, more gentle, more expressive, more intuitive, and more outward than men are, and thus bond more with other women in a special way that they can’t with men. Men, on the other hand, are not that emotional, and thus can’t bond with other men in a special way. Women are more comfortable being around with other women than they are with men. They have a type of bond that usually men with women won’t really have, or with men and men. Men are usually much lonelier than women are. Men don't often talk about their personal problems with their male friends like how women do with their female friends. Females produce a lot more oxytocin than males do. And that's a reason why women tend to hug a lot more and be a lot more physically affectionate than men do.

é foi uma grande surpresa sabe q esse cara é daqui de porto alegre RS kkkk

To those of you in the U.S. contact The Rare Disease Clinic in Atlanta,Ga where they are doing clinical trials.

😬 p͓̽r͓̽o͓̽m͓̽o͓̽s͓̽m͓̽

We don't acknowledge our consciousness with involuntary actions e.g. heartbeats. But the life sciences has discovered that our so-called discretionary and even unintended actions are the product of coordinated responsive endeavour of our nerves & hormones discharging glands. How can we define consciousness in jurisprudence? I think the rapid advancement in the field of Neurolaw will rely upon the comprehensive definition of Consciousness by the researchers of life sciences and after that jurists will be able to make a conscious definition thereof.

Fantastic presentation of personalised medicine - and a really clear use case for digital twins. Well done Dr Trayanova and team - great work indeed.

That’s my boy.☺️

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